Pain and symptom management resources
PainSA is a chapter of the International Association for the Study of Pain. Their mission is to improve all aspects of pain management in Southern Africa.
Join PainSA: https://painsa.org.za
Below you will find a number of links to downloadable resources on the pain and symptom management in children’s palliative care.
Basic Symptom Control in Paediatric Palliative Care (with 4th edition Formulary 2017)
Basic Symptom Control in Paediatric Palliative Care is a key clinical tool used by children’s palliative care doctors and nurses across the world. It is the only resource of its kind that provides comprehensive guidelines for treating a wide range of symptoms experienced by children with life-limiting or complex health conditions.
Learn more on the Together for Short Lives website
Download as a PDF: ProRes-Symptom-Control-Manual-with-4th-edition-formulary-2017
Association for Paediatric Palliative Medicine Master Formulary 2017 (4th edition)
The first two editions of the Association of Paediatric Palliative Medicine Master Formulary generated considerable interest probably because they were the first times all available children’s palliative prescribing information was collated in a single volume. The third edition was published in 2015, and built on the earlier editions, not least as they were some major changes in the use of certain medications so that there was some extensive re-writing and updating of key references.
WHO Guide: Integrating palliative care and symptom relief in paediatrics
A wide range of childhood health problems can generate the need for palliative care and symptom relief including not only advanced noncommunicable disease and HIV/AIDS, but also severe prematurity, birth trauma, congenital anomalies, severe non-progressive disabilities such as paraplegia and quadriplegia, drug-resistant tuberculosis and injuries. Paediatric palliative care requires special knowledge and skills, and it is essential that all providers of primary health care for children and paediatric specialty care possess these competencies.
The contents of this guide are relevant to anyone involved with planning, implementing or managing paediatric palliative care, including officials of United Nations organizations working with children, Ministry of Health officials, public health leaders, hospital managers, nongovernmental organizations, general and specialist paediatricians, surgeons, anaesthesiologists, primary care providers and palliative care providers. It has been developed by a working group of experts in PPC and symptom relief from around the world with extensive experience in working in low and middle income countries.
Pediatric Pain Letter
Pediatric Pain Letter (PPL) provides free, open-access, peer-reviewed commentaries on pain in infants, children and adolescents. It is published online in February, June and October.
Paediatric Pain Profile (PPP)
The Paediatric Pain Profile (PPP) is a behaviour rating scale for assessing pain in children with severe physical and learning impairments. From the website you can download the PPP with instructions for its use.
How to become a P.I. Pain Investigator into Childhood Pain
Dr Annemarie Oberholzer
This book will prepare you to become a PI – Pain Investigator. You will be able to solve some of the mysteries of childhood pain, and you will also get the right tools to handle painful experiences. It explores the mystery of pain as this is crucial in understanding pain.
Download as a PDF: http://peprogram.co.za/free-book
The ICPCN Pain Assessment Tool
The ICPCN Pain Assessment Tool is an app for smartphones that is:
- universally relevant to children of all races and cultures
- provides intuitive, child friendly and interactive pain scales
- tracks and measures the child’s pain type and levels over an extended period of time.
The app is available to download for free from the Google Play Store for android phones and the Apple iStore.