Research in Children’s Palliative Care
Limited research exists within the field of children’s palliative care, particularly as it relates to South Africa and southern Africa. Below we have listed some of the the research available, Journals that focus on children’s palliative care and links to websites where further research can be found and downloaded.
If you have research you think would be of benefit to Patch members, please feel free to send information on the research to us at email@example.com
Assessment of the Need for Palliative care for Children: Three Country Report: South Africa, Kenya and Zimbabwe
Stephen R. Connor,PhD, Chenjerai Sisimayi
Published in November 2013, the assessment was conducted in three sub-Saharan countries; Kenya, South Africa, and Zimbabwe. Its aim was to analyse existing secondary data on palliative care to estimate the palliative care need amongst children and explore with service providers the key gaps in the response. The research reveals that the need for pallaitive care for children is high in all the countries.
Estimating the Global Need for Palliative Care for Children
Stephen R. Connor PhD, Julia Downing PhD, Joan Marston RN
The estimation of need for CPC is a critical step in meeting the needs of children with life-threatening conditions and provides a sound platform to advocate for closure of the unacceptably wide gaps in coverage.
Download the Article: Estimating the Global Need for CPC – JPSM
The Lancet Commission on Global Access to Palliative Care and Pain Relief
The Lancet Commission on Global Access to Palliative Care and Pain Relief was the result of a three year project involving 61 co-authors from 25 countries. The authors developed an essential package of palliative care services – including medicines, equipment and staffing models – to be made available by health systems worldwide, and call for more balanced global policies to facilitate access to opioid analgesics to meet medical need, while limiting non-medical use. Although the Commission did not undertake a separate analysis for children, there are references to children throughout the report.
Read more on the ICPCN website and download the report.
The Status of Paediatric Palliative Care in Sub-Saharan Africa – An Appraisal
Dr Richard Haring, Professor Lorraine Sherr, Dr Rene Albertyn – July 2010
This timely report provides a thorough and systematic appraisal of the evidence of the need for, and reported evidence on, palliative care for children in sub-Saharan Africa, and makes a comprehensive series of recommendations for researchers, care providers, donors and policy-makers.
Download the research: The Status of Paediatric Palliative Care in sub-Saharan Africa_July 2010
Pediatric Palliative Care
Edited by Dr Stefan Friedrichsdorf, this special edition ‘Pediatric Palliative Care’ published in the Open Access Journal Children is a collation of 20 outstanding articles from many of the leading paediatric palliative care researchers and clinicians worldwide.
Download the book as a PDF: Pediatric Palliative Care Book
The Role of Play in Children’s Palliative Care
Sue Boucher, Julia Downing PhD, Rise Shemilt
Play is the universal language of childhood and the time and opportunity to play is every child’s right. The role of play as a vehicle for communication, a tool for distraction and its value in the holistic development of a orma child is without dispute. The role and value of play increase proportionately when a child is made more vulnerable through illness or disability. The paper outlines the role and value of play as an integral component in the provision of pallaitive care for children.
Download the article: The role of play in childrens palliative care
Children’s Palliative Care: Considerations for a physical therapeutic environment
Julia Downing, Joan Marston, and Edwina Fleming
It is important for those who are working to develop children’s palliative care services in different countries with different resources to consider the physical environment in which children are to be provided with care. This article reviews the need for planning considerations related to the physical environment and describes the implications for service delivery.
Download the article: Children’s Palliative Care – Considerations for a physical
Pain and Sedation Scales for Neonatal and Pediatric Patients in a Preverbal Stage of Development
A Systematic Review
Vito Giordano, Joy Edobor, Philipp Deindl
Clinicians should consider using scales that are validated for at least construct validity, internal consistency, and interrater reliability, combining this information with the population of interest and the construct the scale is intended to measure.
Learn more and download the review here
Synopsis is issued by the UK charity Together for Short Lives twice a year. It contains hundreds of articles drawn from as many medical, nursing and social care journals as possible. Synopsis captures the key research relevant to children and young people’s pallaitive care.
Download the latest and previous editions from the Together for Short Lives website.
NHPCO Pediatric E-Journal
This theme based Paediatric E-Journal is produced by the Pediatric E-Journal Workgroup of the National Hospice and Palliative Care Organization (USA).
Visit the website to download present and past editions of the E-Journal.
Centre for Pediatric Pain Research
The Centre for Pediatric Pain Research is an international leader in children’s pain research based in Canada. Their web site provides an overview of their work, including current research activities at the Centre.
A Network for Accessible, Sustainable and Collaborative Research in Paediatric Palliative Care (PedPalASCNET) is a Canadian research network that engages in resource sharing, capacity building and knowledge translation.
Pediatric Palliative Care Research Network (PPCRN)
The Pediatric Palliative Care Research Network (PPCRN) is an interdisciplinary, multi-centre team of researchers and clinicians in the United States who are using research to improve the quality of care for children with life-threatening conditions and their families.