Registration fee

R120 per person which also covers the cost of refreshments and lunch

Venue

The workshop will take place in the dining hall at ROYAL HOSPITAL in Pietermaritzburg, KZN.

Address: 301 Burger St, Pietermaritzburg. Find directions at https://rh.org.za/contact/

Time

We have a very full programme. The workshop will start promptly at 08h30 so please plan to arrive between 08h00 and 08h30 so as not to miss anything! The programme ends at 15h30.

Who should attend?

This workshop will focus on providing palliative care from the time of a diagnosis of a life-threatening or life-limiting condition of the fetus or the baby. We welcome anyone who may be involved in the care of a mother and her child during pregnancy, birth and post-natal period, including but not limited to:

  • Parents
  • Healthcare providers such as doctors, midwives, nurses, etc.
  • Social workers
  • Therapists
  • Genetic Counsellors
  • Clinical Geneticists
  • Funeral Directors and employees
  • Bereavement Doulas

Speakers /Workshop Facilitators

Speakers and workshop facilitators will include:

  • Sr Tracy Rawlins (Education & Training Manager – PatchSA)
  • Sue Boucher (Programme Manager – PatchSA)
  • Dr Julia Ambler (Children’s Palliative Care Doctor – Umduduzi)
  • Tracey Brand (Medical Social Worker – Umduduzi)
  • Carmen Levey (Physiotherapist – The Nurture Hub)
  • Dr Mama-Asu Peprah (OB/Gyn – The Nurture Hub)
  • Dr Trudy Martin (Neonatologist – Greys Hospital)
  • Nokulinda Mkhize (Traditional Healer/Author)
  • Dr Serantha Foolchand (Maternal Fetal-Medical Specialist)
  • Sinead Cameron-Mackintosh (Genetic Counselor)

CPD Points

The workshop has been allocated a total of 5 Continuing Professional Development (CPD) points from the Colleges of Medicine of South Africa (CMSA). These are:

Level 1 : 3 General & 2 Ethics points

Please indicate on the registration form if you need CPD points and provide us with your HPCSA Registration number. 

Click on the links below to learn more about each of the participating organisations.

Collaborating Organisations

The Nurture Hub

Umduduzi Hospice Care for Children

Palliative Care for Children South Africa

Workshop facilitators / Speakers

Sr Tracy Rawlins

Tracy Rawlins is a qualified professional nurse, midwife and health educator. Her experience in caring for the terminally ill in her community laid the foundation for her qualification in adult palliative care but her heart and passion has always been in working with babies and children. She successfully completed her post grad diploma in Paediatric Palliative care medicine in 2017 cum laude. She is the Education and Training Manager at PatchSA and is an instructional designer and facilitator of the Patch Academy online courses.

Dr Julia Ambler

Dr Julia Ambler is the co-founder and Medical Director of Umduduzi Hospice Care for Children. In her role, she consults in children’s palliative care, trains health professionals and is a sessional lecturer in the Dept. of Paediatrics at Nelson Mandela Medical School, UKZN. She holds the only Paediatric Palliative Care post within the Department of Health (DoH) in South Africa working 10 hours per week at Inkosi Albert Luthuli Central Hospital. She is passionate about holistic care, comfort and ensuring the best quality of life for children with serious illness and their families.

Tracey Brand

Tracey Brand is the Director and co-founder of Umduduzi Hospice Care for Children. She is a medical social worker who is involved in teaching and training doctors, nurses and social workers in paediatric palliative care. She is an honourary lecturer in the Department of Paediatrics, Nelson Mandela Medical School at UKZN and also provides direct services to children and their families.

Dr Mama-Asu Peprah

Dr Mama-Asu Koranteng Peprah is an Obstetrician and Gynaecologist in private practice in Pietermaritzburg. She is a mother to 2 energetic boys and has been married for the past 11 years. After being awarded her Bachelor of Medicine and Bachelor of Surgery (MBChB) degree by the University of Cape Town in 2008, Dr Koranteng-Peprah went on to complete her specialist training at the University of the Witwatersrand Johannesburg as well as obtaining a master’s degree in medicine in Obstetrics and Gynaecology in parallel. She worked as a consultant and lecturer at Charlotte Maxeke Johannesburg Academic Hospital and the University of the Witwatersrand until 2017 where she then went into private practice. She is also a director of 100ABC, which is a non -profit organization that seeks to provide scholarships to girls embarking on their high school journey. She is a co-founder of the Nurture hub, a perinatal medical and psychological service that supports, educates and empower parents in their parenthood journey.

Carmen Levey

Carmen Levey

Carmen is a practicing Physiotherapist and co-founder of The Nurture Hub along with Dr Mama-Asu Peprah where they aim to provide a community for new parents to learn, heal, adapt, share and grow. Carmen is passionate about promoting awareness around the importance of mental health of parents, both during pregnancy and in the postpartum period, and breaking the stigma around mental health disorders and diagnoses.

Nokulinda Mkhize

Nokulinda is a sangoma and mother of 4. She has been practicing as isangoma since 2008 and is an authority in the realms of African cultures, indigenous spiritual knowledge and cosmologies. Combining her experience as isangoma, academic knowledge, creativity and media expertise she has shared and taught extensively on ancestral, cultural and spiritual practices in the modern professional, personal and community contexts. This experience and expertise led to the publishing of her first book Ancestory: Ancient lessons for Modern Life in 2022. She pioneered the ever-evolving niche for izangoma, including using digital resources to expand the scope of practice of ubungoma. She also founded and hosts the annual GogoSpeaks events, her practice has been featured extensively in local and international media and she is the co-founder and director of Mashoba Media – a Pan-African boutique creative agency and production company.

Dr Trudy Martin

Dr Trudy Martin is currently the Clinical Head of the Neonatal Intensive Care Unit at Grey’s Hospital in Pietermaritzburg, one of two in the state sector in KZN that treats newborns requiring surgical intervention. It also manages babies with congenital disorders as well as babies born extremely premature, sometimes close to the limits of viability. Working in an intensive care unit with the above conditions brings staff face to face with pain, suffering and death on almost a daily basis. Dr Martin believes it is because of this that the need for a palliative care approach for any baby admitted to the NICU has become not only a vision but a priority and passion for her and the staff of the NICU.

Dr Serantha Foolchand

Dr Serantha Foolchand is a highly accomplished maternal-fetal medical specialist (also known as a perinatologist) who received the MEC for Health Award in 2016/2017 for Service Excellence. She is the founder of KZN Fetal Therapy. She was part of the surgical team that performed ground-breaking foetal cardiac intervention in 2016 at the Inkosi Albert Luthuli Central Hospital. She was also awarded the Panache Woman of Wonder Award this year. Using cutting edge technology KZN Fetal Therapy provides patients with advanced testing and monitoring including specialised ultrasounds, tests for chromosomal conditions, genetic counselling, fetal blood testing and fetal therapy.

Sinead Cameron-Mackintosh  

Sinead Cameron-Mackintosh is an HPCSA-registered genetic counsellor based in Hilton, Kwa-Zulu Natal. She completed her undergraduate and honours degrees at the University of Pretoria majoring in human genetics and physiology, which gave her foundational knowledge of molecular genetics and the human body. She completed a master’s degree in Genetic Counselling at the University of Cape Town. This was accompanied by a two-year internship at several hospitals across the country, including Red Cross Children’s, Groote Schuur, Inkosi Albert Luthuli, KZN Children’s, and Harry Surtie Hospitals in Western Cape, KZN and Northern Cape. During this time she gained experience in several areas of medical genetics such as prenatal, paediatrics, oncology, and adult genetics.

Programme

Time

Topic

Presenter

8:30 – 08:45 Welcome and introductions Nurture Hub

PatchSA

Umduduzi

08:45 – 09:00 Parental perspective and experiences Family
09:00 -09:30 Underpinning the principles of Perinatal and Neonatal Palliative Care including decision making, ethics and Advance Care Planning Dr Julia Ambler
09:30 – 09:50 A team approach to referral pathways Sr Tracy Rawlins
09:50 – 10:30 Identifying your challenges in providing Perinatal Palliative Care and reframing them as questions for our panel Small group activity
10:30 – 11:00 TEA & COFFEE
11:00 – 11:20 Communicating compassionately: Delicate dialogues when sharing significant news – what to share, how to share it, where to share it Dr Mama-Asu Peprah
11:20- 11:40 Embracing diversity: Cultural sensitivity in Perinatal Palliative Care Nokulinda Mkhize
11:40 – 12:00  Providing spiritual care and bereavement support Tracey Brand
12:00- 12:40 Nurturing Comfort: Creating a supportive environment in the NICU, including pain and symptom management Dr Trudy Martin
12:40 – 13:30 LUNCH
13:30- 14:10 Panel discussion – Panel members:
Carmen Levey – Physiotherapist
Sinead Cameron-Mackintosh – Geneticist
Tracey Brand – Social Worker
Dr Trudy Martin – Neonatologist
Nokulinda Mkhize – Traditional Healer
Sr Tracy Rawlins – Nurse
Dr Mama-Asu Peprah – OBGYN
Dr Serantha Foolchand – Perinatologist
Moderator:

Dr Julia Ambler

14:10 – 14:30 Crafting legacies of love: Exploring grief along the continuum of care and the significance of memory making Tracey Brand
Sr Tracy Rawlins
14:30 – 15:15 Bringing it all together: A Case study Dr Trudy Martin
15:15 – 15:30 Wrap up and close PatchSA

Launch of the Patch Academy Online Course on Perinatal Palliative Care

We will officially launch the Patch Academy Online Course on Perinatal and Neonatal Palliative Care at the Event. All those attending will be given a discount coupon to complete the course.

Patch Academy online course on Perinatal and Neonatal Palliative Care

PatchSA will be launching their latest Patch Academy online course on Perinatal Palliative Care at this workshop.

The course is based on the PatchSA book published in collaboration with Bettercare and topics include:

  • A palliative care approach to pregnancy
  • Care and support of the mother and baby during labour
  • Key considerations in perinatal palliative care

Discount coupons for this course will be offered to workshop attendees.

Learn more about Patch Academy – our online learning platform 

Perinatal Palliative Care – A guide to supporting families when a baby is at high risk of dying

Perinatal Palliative Care A guide to supporting families when a baby is at high risk of dying before or shrtly after birthThis is a helpful and easy to read guide written for midwives, nurses, doctors, social workers, psychologists, counsellors, spiritual leaders, therapists and anyone who interacts with and provides care for pregnant mothers and families when the expected baby is likely to die before or soon after birth.

These books will be available on sale at the workshop for a discounted price of R120 (Normally R160) Payment can be made by cash or Zapper.

Learn more about the book

Register and pay for the workshop

Fill in the form below to register for the workshop and then use the Payfast button to pay.

Please note that after 18 October, no refunds can be made due to catering arrangements. 

Payment for the Perinatal Palliative Care Workshop

For venue and catering purposes, registration and payment for the workshop must be done in advance.

Closing date for registration is Wednesday 18 October

Please note, your registration will only be confirmed once your payment has been received.

Please check your email for confirmation of registration to attend the workshop. (Registrations will be processed during working hours.)

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Payment via EFT

If you would prefer to pay via EFT or to pay for more than one person, please use the banking details below. Once payment has been made, please send POP to Sue Boucher at info@patchsa.org with the names of those you are paying for.

Account Name: PALLIATIVE CARE FOR CHILDREN

Bank: Standard Bank

Branch: Rondebosch 025009

Universal Branch Code for electronic payments: 051 001

Account Number: 27 058 442 0

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Payment via Payfast

To pay for yourself using Payfast, please click on the button below. Payfast accepts most Debit and Credit cards used in South Africa.