fiona, Author at PatchSA

MedPal-CNN – a new app to teach healthcare professionals about paediatric palliative care

fiona — Mon, 21 Oct 2019 14:15:24 +0000

MedPal-CNN is an easy -to-use, educational mobile app designed to teach healthcare professionals about paediatric pallaitive care (PPC) and link them with existing evidence-based recommendations. MedPal CNN is a self-teaching tool intended for parents and professionals who care for patients who have already been diagnosed. The goal of MedPal-CNN is to guide health professionals and parents [...]

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Press Release – PatchSA calls on government to implement the palliative care policy for children in need

fiona — Wed, 24 Apr 2019 10:47:42 +0000

PRESS RELEASE For children diagnosed with serious life-threatening and life-limiting illness in South Africa their families are usually shocked to discover there are so few services available to help them cope. In 2014 South Africa was co-sponsor of a World Health Assembly Resolution calling on all member states to include palliative care within their health [...]

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Sign the petition

fiona — Wed, 17 Apr 2019 09:17:49 +0000

PatchSA 2019 Declaration of Children's Right to Palliative Care You are called on to sign a Declaration Please can as many as possible sign the Declaration, to show support for the right of every child in South Africa to Palliative Care. Please forward to all your contacts so we get the maximum number of signatures. [...]

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PatchSA Declaration of Children’s Right to Palliative Care

fiona — Wed, 17 Apr 2019 08:31:53 +0000

This declaration originated at a High Level National Stakeholder meeting for children with serious illness in Braamfontein, South Africa on 18 March 2019, co-hosted by Patch-South Africa and the South African government's National Department of Health. The declaration articulates the need for children’s palliative care to be recognised and for palliative care services for children [...]

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PatchSA 2019 Declaration Recommendations

fiona — Sun, 07 Apr 2019 19:07:42 +0000

APPENDIX HIGH LEVEL NATIONAL STAKEHOLDER MEETING FOR CHILDREN WITH SERIOUS ILLNESS – RECOMMENDATIONS ARISING FROM 18 MARCH 2019 MEETING The twenty (20) recommendations below have been grouped according to the WHO Public Health Model. The Guiding Principles according to South Africa’s Constitution are then outlined and the 20 Recommendations are unpacked in detail on [...]

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Lessons in Love and Life from 12 Year Old Lola

fiona — Sun, 07 Apr 2019 19:02:36 +0000

Author: Moriah Ratner First Published in National Public Radio, March 31, 2019 http://Lessons in Love and Life from 12 Year Old Lola

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‘That Good Night’ Perfectly Explains How Palliative Care Differs From Hospice

fiona — Sun, 07 Apr 2019 17:41:01 +0000

How Palliative Care Differs from Hospice By JUDY STONE “palliative care teams can and should see patients at ANY stage of their disease process, not just at the very end of their lives." "we likely would be better prioritizing quality of life rather than fighting the inevitability of death" I just wrote about my patient [...]

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The hidden suffering of seriously ill children

fiona — Fri, 15 Mar 2019 15:09:00 +0000

More than a million children are dying from – or living with – incurable conditions, sometimes in great pain. The state has a duty to protect children from suffering, especially the hidden suffering of seriously ill children. Although South Africa can boast a comprehensive palliative care policy, it has not yet been implemented. This means [...]

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Treatable TB meningitis disables too many SA children

fiona — Fri, 08 Mar 2019 20:27:19 +0000

Children admitted to Tygerberg Children's Hospital with TB meningitis are often admitted too late to change their condition. While they are likely to survive, their chances of a normal, healthy life are dashed. TB meningitis can be devastating for children, leading to death or permanent disability, yet the disease can be prevented and treated if caught in [...]

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When a child is dying, the hardest talk is worth having

fiona — Fri, 08 Mar 2019 19:05:00 +0000

By Bob Tedeschi Paula Skelley, mother of Lydia Valdez, poses for a portrait with a "memory quilt" made from Lydia's pajamas and bathrobe, in her home on January 21, 2016, in Portsmouth, New Hampshire. (Kayana Szymczak for STAT) When her daughter Lydia Valdez was sick with terminal cancer, Skelley said their open [...]

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