Palliative Care for Children: A guide for improving the quality of life of patients and their families
Author: PatchSA Training Team
Publisher: Bettercare
ISBN-9:781928 313175
Publication date: 2020, updated in 2024
Palliative Care for Children a useful and easy to read South African guide on the key elements of children’s palliative care written for doctors, nurses, social workers, psychologists, counsellors, spiritual leaders, teachers, therapists and anyone who interacts with and provides care for seriously ill children.
The book was created as a collaborative project with Bettercare whose materials are used widely by government and private hospitals, non-profit organisations and training institutions in South Africa and other countries and its publication was made possible through generous funding from The Discovery Fund.
It has been written by an experienced multidisciplinary team of experts working within the field of children’s palliative care in South Africa.
Purchase the book – R290
Perinatal Palliative Care: A guide to supprting families when ababy is at high risk of dying before or shortly after birth
Author: PatchSA Training Team
Publisher: Bettercare
ISBN (Paperback): 978-1-928313-22-9
Publication date: 29 August 2022
Perinatal Palliative Care: A guide to supporting families when a baby is at high risk of dying before or shortly after birth is a helpful and easy to read guide. It has been written for midwives, nurses, doctors, social workers, psychologists, counsellors, spiritual leaders, therapists and anyone who interacts with and provides care for pregnant mothers and families when the expected baby is likely to die before or soon after birth.
The book was created as a collaborative project with Bettercare whose materials are used widely by government and private hospitals, non-profit organisations and training institutions. Its publication was generously funded by The Discovery Fund.
The first of its kind on perinatal palliative care written for a South African audience, the guide was authored by an experienced multidisciplinary team of experts working within the field of children’s palliative care led by Sister Tracy Rawlins, a professional nurse and the Education and Training Manager at PatchSA.
Topics covered within the book include:
- Introduction to Perinatal Palliative Care
- Providing palliative care in the antenatal period
- Care and support during labour and immediately after delivery
- Care and support during the neonatal period.
Purchase the book – R160
Oxford Textbook of Palliative Care for Children
THIRD EDITION
Author: Edited by Richard Hain, Ann Goldman, Adam Rapoport, and Michelle Meiring
Publisher: Oxford University Press
ISBN-10: 0198526539
ISBN-13: 9780198821311
Publication date: 2021
This book is the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care.
It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on the knowledge that all human experience has a physical, emotional, psychological and spiritual impact. The book covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach. This edition includes two new chapters looking in detail at ‘Decision Making’ and ‘Perinatal Care’ and a new section highlighting the emerging importance of ‘Palliative Care for Children in Humanitarian Crises’. There is in addition a new section providing the voices of two parents telling their stories, offering thoughtful recommendations to clinicians
A Really Practical Handbook of Children’s Palliative Care for Doctors and Nurses Anywhere in the World
Edited by Dr Justin Amery
This book is offered as a free ebook and can be downloaded in various formats from this website or from Lulu.com
A Really Practical Handbook of Children’s Palliative Care for Doctors and Nurses Anywhere in the World offers really practical solutions to common problems faced by health professionals caring for dying children and their families, whatever their culture or socioeconomic circumstance. After spending more than twenty years caring for children with terminal diagnoses, Dr. Justin Amery has applied his hands-on experience and the fruits of his research to this compendium of practical advice. The book’s fifteen parts address not only the numerous practical matters that arise in offering palliative care to children, but also the intangible, yet vital, practices for communicating bad news, helping families with their emotional reactions, assisting children and their families with ethical and spiritual issues, and working with surviving family members as they grieve. The volume also includes, as an additional resource, the Association of Paediatric Palliative Medicine Formulary.
PLEASE NOTE: This book is made freely available by the author in order to improve the provision of Children’s Palliative Care around the world. Please feel free to download it, copy it and send it to as many of your colleagues as you’d like. However, please do not amend the content in any way.
Download the book as a PDF: A REALLY PRACTICAL HANDBOOK OF CPC
Download the book as an EPUB Book file
Purchase the book (US14.85)
Oxford Textbook of Children’s Palliative Care in Africa
Edited by Dr Justin Amery
Children’s Palliative Care in Africa is a textbook that responds to the enormous and growing need for children’s palliative care services in Africa and other resource-poor settings.
This comprehensive textbook is the first to be written by practitioners working in Africa, specifically to meet the palliative care needs of children. It provides practical guidance by improving access to, and delivery of, palliative care in this demanding setting.
Written by a group with wide experience of caring for children with life-limiting illnesses in Africa, and edited by Dr. Justin Amery, the textbook addresses key palliative care themes, which are crucial to expanding the provision of children’s palliative care.
The book is particularly suitable for:
- Those working with children with HIV/AIDS (for whom palliative care should be an essential part of treatment);
- Those working in the adult palliative care sector (many of whom also care for children);
- Those working in other paediatric and child health specialities.
While the book is primarily aimed at health and social care professionals, and is written with sufficient depth to be of use to specialists, its style is accessible for a range of other people concerned and involved in the care and treatment of children with life-limiting illnesses.
The textbook is being sold through the Oxford University Press for US$70.
You can also download it for FREE as a PDF from the ICPCN website.
Supporting the Child and the Family in Paediatric Palliative Care
Author: Erica Brown with Brian Warr
Publisher: Jessica Kinsley Publishers
ISBN: 978-1-84310-181-9, BIC 2: JKSN JKSN2 MQCL9
Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families.
Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children’s own questions about death, and the impact of life-limiting illness on the whole family – including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral.
This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.