Palliative Care for Children South Africa
People who care
supporting people who care
Palliative Care for Children South Africa (PatchSA) is an inclusive network advocating for and offering referrals, information, resources, education and training in children’s palliative care to ensure the best possible holistic and compassionate care for children with life-threatening and life-limiting illnesses and support for their family members. We are
- A registered non-profit organisation NPO no: 294-070
- A registered Non-Profit Company NPC no. 2021/978704/08
- And a Public Benefit Organisation PBO no: 930083738

Support Us
Help us help children with life-threatening and non-curable illnesses, and their families, to have the best quality life possible.
Join Us
Become a member. PatchSA welcomes family members, caregivers, child-caring and healthcare professionals to join the network.
Subscribe
Receive our monthly email newsletters with the latest news and events relevant to children’s palliative care in South Africa.
Leading on Paediatric Palliative Care in South Africa by Supporting Communities, Families & Healthcare Providers
PatchSA welcomes any families, lay caregivers and child-caring professional including paediatricians, GPs, nurses, social workers, allied health practitioners, psychologists, teachers, clergy etc to join the network.
About Us
O
ur Vision
To ensure the right of every child to access quality palliative care in South Africa.
Our Mission
To mobilise and support a sustainable network of individuals, organisations, professionals and caregivers to provide palliative care for children and their families from diagnosis to bereavement as an essential component of Universal Health Coverage.
Our Objectives
PatchSA is a Non-Profit Organisation (NGO) and a Public Benefit Organisation (PBO) established for the following objectives which can be categorised using the acronym R.A.I.S.E. :
Resources
To provide relevant and culturally appropriate resources for healthcare providers offering children’s palliative care, for parents of children with palliative care needs and for children & young people needing palliative care.
Advocacy
To be a strong collaborative voice for the right of children to receive quality palliative care. To influence policy development in children’s palliative care. To advocate for the integration of palliative care into all children’s services.
Information & Networking
To be a reliable and trustworthy source of information on children’s palliative care in South Africa and to be a networking service to connect providers and those who need to access palliative care for children.
Support
To offer support to healthcare providers, to children and to families, ensuring the voice of the child and family informs all activities of the network. To promote care for the caregiver.
Education & Research
To provide evidence-based and culturally relevant education on children’s palliative care for professionals and caregivers and to drive the research agenda for evidence-based children’s palliative care in our country. Find our online courses at www.academy.patchsa.org
Download our brochure: PatchSA Brochure
What we do
PatchSA is a national network that focuses on supporting the provision of palliative care to an estimated 800,000 – 1,000,000 children living in South Africa with a life-limiting or life-threatening condition, and their families.
We do this in the following ways:
Resources:
PatchSA offers a wealth of relevant tools and resources for healthcare providers and carers which includes two Bettercare textbooks on palliative care for children and perinatal palliative care, a pain assessment tool, palliative care planning tools, and an online formulary for paediatric palliative care prescribing.
Advocacy:
We are a strong collaborative voice for the right of children to receive quality palliative care. We have an active Advocacy Committee that aims to influence policy development in children’s palliative care and to advocate for the integration of palliative care into all children’s services and relevant healthcare facilities.
Information and Networking:
We are a trusted and reliable source for information related to children’s palliative care services and practices in South Africa both within and beyond our borders.
Support:
We work to ensure the voice of the child and family informs all activities of our network. We also promote care and support for health care providers, parents and caregivers providing day to day care to children with palliative care needs.
Education & Research:
We provide evidence-based education in children’s palliative care for health care providers through face-to-face training and through Patch Academy, an online learning platform. Patch Academy is an educational resource for all members of the multidisciplinary team caring for babies, toddlers, children and young adults with life-threatening and life-limiting illnesses and conditions and their families. The courses are CPD accredited by the Colleges of Medicine of South Africa and open to anyone with a desire to know more about the practice and delivery of neonatal, perinatal and children’s palliative care.
We contribute to, participate in and signpost research relevant to children’s palliative care in order to drive the research agenda for evidence-based children’s palliative care, particularly as it pertains to South Africa and other Low- and Middle-Income Countries.
Read Our Annual Reports
Our Bookkeeper
Margaret Louw
Bookkeeper
Margaret studied at Pretoria and Stellenbosch Universities, and worked as a teacherlibrarian and as a translator for Parliament. She later worked as a financial manager at a thoroughbred horse farm for 17 years. Retirement in 2021 for her was just a transition to reconnect with the community as a volunteer and continue with freelance work, including her bookkeeping services for PatchSA.
Our Funds Procurement Manager
Malcolm Kling
Funds Procurement Manager
Malcolm has brought his vast experience in fundraising, marketing and sales, together with his passion, energy and single-minded devotion to causes advancing children’s health and care, to the PatchSA team, which he joined in the second half of 2021. Malcolm’s original training and experience was in business administration, financial management and accounting, followed by over 19 years in marketing and sales. In February 2003, Malcolm was appointed as Funds Procurement Manager of the Tygerberg Children’s Hospital Trust, during which time he also served on the School Governing Body and the Finance Committee of Tygerberg Hospital School. During the ensuing more than 16 years, Malcolm developed enormous passion for and devotion to fundraising for the benefit of less fortunate children and newborn babies, witnessing the life-changing enhancement of their healthcare through investment of funds in upgrading facilities and purchasing essential medical equipment. Malcolm has realised the enormous challenges and many shortcomings in the provision of children’s palliative care in South Africa and is inspired to procure funds needed to enable PatchSA to achieve its important objectives.

At the launch of the South African Children’s Palliative Care Network in 2012 were from left to right, Joan Marston, Dr Kaliah Johnson, Dr Michelle Meiring and Cindy Illing
How it all began
- The development of a palliative care network for children in South Africa (SA) was the brainchild of Mrs Joan Marston who set up the Paediatric Sub Committee while working at the Hospice Palliative Care Association of South Africa (HPCA) and is the past Chief Executive and Global Ambassador of the International Children’s Palliative Care Network (ICPCN).
- The intention to set up a children’s network was presented to the Palliative Care Society of South Africa (PCSSA) by Dr Michelle Meiring in October 2008.
- In 2009 the Hospice Palliative Care Association (HPCA), with funding support from the Diana Princess of Wales Memorial Fund (DPOWMF), established a virtual resource centre for children’s palliative care (known as the Baobab PPC website) and also developed community based centres of excellence (known as Beacon centres).
- By 2010 the Bigshoes Foundation had developed hospital-based Paediatric palliative care teams in three provinces (Gauteng, KZN and Western Cape)
- In February 2012 HPCA, ICPCN and the Bigshoes Foundation met to discuss how they could work together to extend the reach of quality children’s palliative care in SA and formed the South African Children’s Palliative Care Alliance.
- One of the goals of the alliance was to set up the South African Children’s Palliative Care Network (SACPCN).
- The SACPCN was officially launched at the 25th Anniversary conference of the HPCA in September 2012.
- The network’s new name, PatchSA, was officially presented on the 18th of September 2013 to the palliative care community at the joint HPCA and African Palliative Care Association (APCA) conference in Johannesburg.

Original PatchSA Committee members met in Cape Town in September 2014
L to R: Cindy Illing, Dr Michelle Meiring, Joan Marston, Dr Julia Ambler, Tracey Brand, Annanda Bothma, and Sue Boucher
Looking to the future
On 25 April 2023 a Strategic Planning meeting was held at Rondebosch Medical Centre in Cape Town which brought together, for the very first time, members of the board, staff members and consultants – all of whom contribute to keeping PatchSA relevant and ensure that we are fulfilling our mission to ensure the right of every child to access quality palliative care in South Africa.
We acknowledge with gratitude the contribution of Adcock Ingram for a grant in support of the hosting of our websites.
























