People who care

supporting people who care

Palliative Care for Children South Africa (PatchSA) is an inclusive and compassionate network that aims to share specialised knowledge, tools, resources and opportunities to ensure the best possible care for children with life-threatening and life-limiting illnesses, and to provide support to healthcare professionals, families and lay caregivers.

PatchSA is a Non-Profit Company. NPC (2021/978704/08)

A registered non-profit organisation. NPO no: 124-201;

And a Public Benefit Organisation. PBO no: 930047744

Hats On for Children’s Palliative Care

Friday 14 October

#HatsOn4CPC falls is in its 9th year and always falls on the second Friday in October, which this year is Friday 14 October. To raise awareness of the many thousands of children in our country who need palliative care, please consider wearing a hat on Friday 14 October, taking a photo or selfie and posting it to your social media platforms using #HatsOn4CPC and tagging us using @PatchPalliative

Find out more

Serving Communities, Families & Healthcare Professionals

PatchSA welcomes any families, lay caregivers and child-caring professional including paediatricians, GPs, nurses, social workers, allied health practitioners, psychologists, teachers, clergy etc to join the network.

Community

Community

PatchSA community seeks to empower the broader community to support professionals and affected families through fundraising and
other practical initiatives.

Family

Family

PatchSA  supports families and lay-caregivers through referrals and sharing information, practical tools and experiences along their unique journeys.

Learn more

Healthcare

Healthcare

PatchSA supports healthcare professionals through sharing information, the development of resources, promoting and providing learning opportunities, advancing advocacy and participating in research opportunities.

Join Us

Become a member. PatchSA welcomes family members, caregivers, child-caring and healthcare professionals to join the network.

Support Us

Help us help children with life-threatening and non-curable illnesses, and their families, to have the best quality life possible.

Subscribe

Receive our monthly email newsletters with the latest news and events relevant to children’s palliative care in South Africa.

About Us

Save the Date for the
South African Palliative Care Conference
Cape Town | 26 – 29 April 2023

The South African Palliative Care Conference 2023 is a collaborative venture between the three leading palliative care organisations in our country, the Association of Palliative Care Practitioners of South Africa (PALPRAC), Palliative Care for Children South Africa (PatchSA) and the Hospice Palliative Care Association of South Africa (HPCA).

This pioneering in-person conference will take place from 26 – 29 April 2023 at the world-class Vineyard Hotel in the beautiful mother city of Cape Town.

The conference aims to reach out to and to welcome people from a broad diversity of vocations whose work brings them in contact with adults, adolescents, and/or children with life-threatening and life-limiting conditions and to encourage the exciting exchange of knowledge, new and innovative ideas, research and experiences.

The overriding focus of the workshops, plenary and parallel presentations at the conference will be on the imperative for palliative care of the future to be inclusive, relevant, and sustainable.

Visit the conference website

Palliative Care for Children – A PatchSA Guide

Purchase our recently published South African guide to Children’s Palliative Care. Palliative Care for Children: A guide for improving the quality of life of patients and their families is a useful and easy to read guide on the key elements of children’s palliative care written for doctors, nurses, social workers, psychologists, counsellors, spiritual leaders, teachers, therapists and anyone who interacts with and provides care for seriously ill children. The book can also be read for free online on the Bettercare website.

Purchase your copy of the guide

Learn online through the Patch Academy

Patch Academy is the education branch of PatchSA. It is an online learning platform created as an educational resource for all members of the multidisciplinary palliative care team providing care to babies, toddlers, children and young adults with life-threatening and life-limiting illnesses and conditions and to their families. All Patch Academy courses are CPD accredited through the Colleges of Medicine of South Africa (CMSA) with General and Ethics CPD points. Try our FREE course Introducing Children’s Palliative Care and earn 5 General CEU’s.

Visit the Patch Academy website

Take our latest course on assessment and palliative care planning

Learn more

“Good children’s palliative care planning means hoping for the best and preparing for the worst. Without a full assessment and an agreed, achievable and realistic care plan it is very difficult to provide good children’s palliative care.”  Dr Justin Amery

This course aims to empower those who work with children needing palliative care to gain the skills and the knowledge that enables them to carry out holistic assessments of children and families and to use the information to develop realistic palliative care plans that, when needed, will include advance care and terminal care plans. The course also provides links to numerous helpful assessment and planning tools and resources that can be downloaded.
 

Learn more and register for the course

Watch our video on neonatal palliative care

Beginnings and Endings – a PatchSA film on the importance of neonatal and perinatal palliative care

“Dying is difficult…. the beginning is not supposed to be the end.”

In this film, set in Cape Town and made for PatchSA, three families courageously share their experiences of losing a child, and living with a child with a life-limiting condition and the support provided to them by their palliative care team. The film takes a close look at the enormous value of neonatal palliative care.

Learn more about the video

Find a children’s palliative care provider in South Africa

There are several services in South Africa dedicated to providing palliative care to children but these are inadequate to meet the growing need for paediatric palliative care provision on all levels. A number of predominantly adult hospices also have staff equipped and trained to provide hospice and palliative care services to babies, toddlers, children and adolescents. We have conveniently mapped and listed the names of all services who can provide palliative care to children along with their relevant contact details.

Find a Children’s Palliative Care Service in SA

Read our latest news

PatchSA is the only national organisation providing strategic support to healthcare professionals, allied healthcare practitioners and parents and lay caregivers in South Africa. Our diverse membership represents those who provide palliative care services to children around the country and we do our best to keep you up to date on what is happening in the field both within our borders and internationally. Read our latest news and stories and subscribe to our monthly newsletter if you want to be kept informed.

Read our latest news

Consult the PatchSA Paediatric Palliative Care Formulary

Based on the (APPM) Association of Paediatric Palliative Care Medicine Master Formulary created by Dr Sat Jassal, the PatchSA Paediatric Palliative Care Formulary provides medical professionals with a list of medicines appropriate in providing paediatric palliative care in South Africa. Many of the medicines are prescribed “off-licence” and “on expert opinion” as it is difficult to do studies in this vulnerable population.

Consult the PatchSA Formulary

Join our grief support group: Patch People who Care

The Patch People Who Care Facebook Group provides a safe, compassionate and supportive environment for parents, guardians/carers and family members who have suffered the loss of a child due to illness or accident. Members have access to the group whenever it is convenient and are able to share their grief, their challenges and heartbreaks and receive the support and compassion of people who understand. People who care. The group is associated with Palliative Treatment for Children South Africa (PatchSA) and membership is at the discretion of the organisation.
Join the Facebook support group