Collaborating for Compassionate Care
The Association of Palliative Care Centres (APCC)
The Association of Palliative Care Centres (APCC), formerly known as the Hospice Palliative Care Association (HPCA) of South Africa, was founded in 1987 and is a registered Not-for-Profit Company (Reg. no. 1986/001887/08) in South Africa.
The APCC is an Association of accredited palliative care service providers, many of whom are known as hospices. All APCC members are accredited against the Standards for Palliative Healthcare Services that have been approved by the Council for Health Service Accreditation of South Africa (COHSASA) and the International Society for Quality in Health Care (ISQua).
Palliative care is the physical, psychological, social and spiritual care provided by an inter-disciplinary team of experts to anyone with a life-threatening illness and their loved ones. Care is offered from the point of diagnosis and extends to bereavement support if needed. Over 90% of the care that APCC members provide is home-based with a focus on promoting quality of life.”
Visit their website: https://apcc.org.za/
Butterfly Palliative Home
The mission of Butterfly Palliative Home is to provide quality palliative care, at no cost, to vulnerable infants and young children in South Africa. Its vision is to advance paediatric palliative care within South Africa and give a voice to vulnerable infants and young children needing palliative placements.
Visit their website: www.butterflyhome.org.za
CANSA (The Cancer Association of South Africa)
Cansa does advocacy work and promotes cancer research, as well as helping individuals affected by cancer. It provides information, help and support.
Visit their website at: www.cansa.org.za
The CANSA TLC (Tough Living with Cancer) project is an initiative of CANSA and assists children and teenagers with cancer.
Learn more at: https://www.cansa.org.za/tlc-for-youth-and-families-affected-by-cancer/
CHOC Childhood Cancer Foundation SA
CHOC aims to provide a fully integrated support programme to alleviate the stress families undergo when their child has cancer. They help with accommodation for families far from home; information about treatments; some transport assistance; and support medical professionals.
Visit their website: www.choc.org.za
CHOC Western Cape & Namakwa Region
Email: wcape@choc.org.za
Tel: 086 110 6441
Childhood Cancer Network, South Africa (CCNSA)
Childhood Cancer Network, SA is a multi-stakeholder group of organisations that engage in childhood cancer care and control in South Africa, brought together to establish a network that seeks to collaborate, co-ordinate and advocate on behalf of childhood cancer and life- threatening blood disorders (LTBD) in South Africa.
Footprints 4 Sam
The Footprints 4 Sam Trust serves underprivileged children and their families as they face the difficult journey of living with a life limiting condition. These complex conditions are often burdensome to the family and the Trust’s 6 key initiatives offer something tangible and beautiful in the midst of much pain and suffering. It is their mission to leave Footprints of change in neonatal and paediatric wards countrywide, through the cultivation of a healthcare culture of swift and broad-based intervention, early diagnosis and real and achievable family centred solutions, which promote excellence of life for both child and family. Changing lives one footprint at a time…
Visit their website: www.footprints4Sam.org
International Children’s Palliative Care Network (ICPCN)
ICPCN is a global membership network of organisations and people working in the field of children’s palliative care or have an interest in this field.
The mission of the ICPCN is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children’s palliative care, lobbying for the global development of children’s palliative care services, and sharing expertise, skills and knowledge.
Membership of ICPCN is free and allows access to the free ICPCN E-learning platform which can be found at www.elearnicpcn.org
Visit their website: www.icpcn.org
Lambano
Lambano goes to exceptional lengths to secure the best medical treatment for children from private and government hospitals in Gauteng and other provinces
where they not only care for the child, we take care of all the social needs of their families as well. Lambano has grown to 4 Homes permanently caring for 28 HIV positive children between the ages of 11 and 22. Through their experience of dealing with very ill children, they decided to open the first dedicated Paediatric Medical Facility/Hospice in Gauteng, initially only taking in ill HIV+ children. With a history of rehabilitating 85% of these little, very ill children they then expanded their services to cater for children with any life threatening and life-limiting illnesses
Visit their website: http://lambano.org.za/
Email: hospice@lambano.org.za
Tel: 011 615 6958
Cell: 066 460 0123
Little Fighters Cancer Trust
The Little FIghters Cancer Trust provides services in three core areas:
- Hospital Ward Support
- Individual Childhood Cancer Affected Family Support
- Promoting and Advocating Childhood Cancer Awareness
Visit their website: www.littlefighters.org.za
Contact: Billi du Preez marketing@littlefighters.org.za
Mama Nurture
Mama Nurture offers support in birth and pregnancy loss. They offer counselling support in the case of miscarriage, stillbirth and neonatal death.
For more information, please see www.mama-nurture.co.za
Please contact Samala Kriedemann directly.
Nicci Coertze Online Training (NCOT (Pty)Ltd)
Perinatal Bereavement Work
NCOT (Pty) Ltd is owned and managed by Nicci Coertze, an internationally trained birth, bereavement and adoption doula, with a special interest in perinatal bereavement and end of life support. Nicci is a professional birth and loss photographer as well as director of Doulas Of South Africa (DOSA.) NCOT currently offers training for people to qualify as Perinatal Bereavement Workers, an online loss course for bereaved parents, and will be offering an End Of Life Doula Training course soon.
For more info please visit www.ncot.co.za or ncot2017@gmail.com directly, not PatchSA.
Paedspal
Paedspal Cape Town is a registered Not For Profit Company: NPC 2016/023260/08) in South Africa. Paedspal’s multi-disciplinary team provides services to children and their families both in the public and private sectors. The team provides a bedside consultative service to hospitalised children and an out-patient clinic service to ambulant children and their families. A future goal of the NGO is to develop a paediatric palliative care in-patient unit (PIPU) that will provide 24/7 paediatric palliative care and hospice services.
Contact:
S301, Stonefountain Terrace,
95 Klipfontein Rd, Rondebosch,
Cape Town, 7700
Tel: 0212005873
Email: info@paedspal.org.za
Website: www.paedspal.org.za
Palprac
The Association of Palliative Care Practitioners of South Africa (Palprac) is a non-profit organisation that was formed in May 2018 by a group of South African doctors who are trained in palliative medicine.
Contact:
Email: info@palprac.org
Website: https://palprac.org/
Reach For A Dream
Reach For A Dream fulfils the dreams of children between the ages of 3 – 18 years who have been diagnosed with a life-threatening medical illness.
We believe in the power of dreams; we encourage children to use their dreams to fight life-threatening illnesses and we try, as far as possible, to make these dreams come true. Our vision is to grow the Foundation to enable us to continue giving hope to children fighting life-threatening illnesses through the fulfilment of their dreams and making our national projects available to as many of the children as we can, the projects include: Camp Sunshine, Queen for a Day, Captain Courage, Show You Care Send A Bear and the Jabulani Kingdom Hospital entertainers which function on an ongoing basis.
Contact: Heidi Rowley (Western Cape Branch Manager) Email: heidi@reachforadream.co.za (021) 555 3013 or cell 082 782 6268
Visit their website: https://reachforadream.org.za
Sunflower Children’s Hospice
Sunflower Children’s Hospice is a non-profit organisation that provides care and compassion for all children with life-threatening and life-limiting conditions. The aim of Sunflower Children’s Hospice is to keep children within their families and communities as far as possible, with relevant supervision and support.
- They provide children and their family with:
- palliative care including pain and symptom management
- quality of life
- relief of suffering
- support for child and family/guardians
- developmental stimulation
- support into the bereavement period
- dignity in death
- community participation
- relevant training
Contact: (051) 448 3813 Email: sunflower007@telkomsa.net.
Visit their FB page: https://www.facebook.com/sunflowerchildrenshospice/
Umduduzi Hospice Care for Children
Together with a team of committed Board Members Umduduzi was founded in December 2012 by Dr Julia Ambler & Ms Tracey Brand. The work that began will continue and children living with life-limiting or life-threatening illnesses will have the opportunity to be cared for by a dedicated team of specialists. Umduduzi offers all their services within the many communities they serve in the greater eThekwini area completely free of charge, thus we are 100% dependent on sponsorship and donations to run our programmes. We rely on the generosity of our donors to enable us to carry out the important work we do bringing comfort and relief to the children of Durban and surrounding areas living with life-threatening or life-limiting illnesses and their families.
Contact: Tracey Brand (Director) Email: tracey@umduduzi.co.za or 083 659 5164
Visit their website: www.umduduzi.co.za