When a child is diagnosed with a serious or life-threatening condition, everything changes. Parents not only have to face the difficult realization that their child is seriously ill and may be suffering, but they may also feel overwhelmed by their lack of understanding of the complex and ongoing medical care that may be required, and the impact that it will have on their current lives as they know it.

Each family is unique and everyone’s journey will be different. PatchSA hopes to ease this difficult journey through the sharing of information and the stories and experiences of other families.

Diagnosis

Diagnosis

Being told that your child may not reach adulthood is something you hope will never…

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Care and Support

Care and Support

Once your child has been diagnosed with a life-threatening or life-limiting condition…

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End of Life Care

End of Life Care

Thinking about the end of your child’s life is extremely difficult, requires a lot of…

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Bereavement Support

Bereavement Support

Many people experience a “roller coaster” of emotions after the death of their child…

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