When a child is diagnosed with a serious or life-threatening condition, everything changes. Parents not only have to face the difficult realization that their child is seriously ill and may be suffering, but they may also feel overwhelmed by their lack of understanding of the complex and ongoing medical care that may be required, and the impact that it will have on their current lives as they know it.

Each family is unique and everyone’s journey will be different. PatchSA hopes to ease this difficult journey through the sharing of information and the stories and experiences of other families.